Opting Out of NHS Digital data sharing
SHARING YOUR DATA OUTSIDE THE PRACTICE
Information held about you may be used to help protect the health of the public and to help the Department of Health manage the NHS. Some of this information will be extracted and held centrally and used for statistical purposes. Where we do this, we take strict measures to ensure that individual patients cannot be identified.
The following are examples of the types of organisations that we are likely to share information with:
NHS and specialist hospitals, Trusts
· Independent Contractors such as dentists, opticians, pharmacists
· Private and Voluntary Sector Providers
· Ambulance Trusts
· Clinical Commissioning Groups and NHS England
· Social Care Services and Local Authorities
· Education Services
· Police, Fire and Rescue Services
Any patient can choose to withdraw their consent to their data being used in this way. When the Practice is about to participate in any new data-sharing scheme we will make patients aware by displaying prominent notices in the surgery and on our website at least four weeks before the scheme is due to start. These schemes are only for direct care so you (or your carer) will be present when the information is accessed and will be asked for consent again, before your records are opened.
A patient can object to their personal information being shared with other health care providers but if this limits the treatment that you can receive then the doctor will explain this to you at the time.
Risk stratification is a process for identifying and managing patients who are at a higher risk of emergency hospital admission. This may be because patients have a long term condition such as COPD, cancer or are more frail. NHS England encourages GPs to use risk stratification tools as part of their local strategies for supporting patients with long-term conditions and help reduce the patients’ risk of hospital admissions.
Information about you is collected from a number of sources including NHS Trusts and from this GP Practice. Your risk is then ‘scored’ after analysis of your anonymous information using computer programmes. Your information is only provided back to your GP or member of your care team in an identifiable form. Risk stratification enables your GP to focus on the prevention of ill health and not just the treatment of sickness.
NATIONAL DATA EXTRACTIONS (Also known as GPES)
The Health and Social Care Act 2012 allows NHS Digital to collate personal confidential data from GP practices without seeking your specific consent. This is extracted in order to make increased use of information from medical records and either used just by the NHS with the intention of improving healthcare and the quality of care delivered to patients or may be sold to external companies such as universities or commercial organisations. Please see below if you do not want your data used in this way.
More information about how NHS Digital uses your data can be found at http://content.digital.nhs.uk/gpes
The Data Protection Act 1998 requires organisations to register a notification with the Information Commissioner to describe the purposes for which they process personal and sensitive information.
This information is publicly available on the Information Commissioners Office website www.ico.org.uk
The practice is registered with the Information Commissioners Office (ICO) as a data controller under the Data Protection Act 1998. The registration number is Z5146666 and can be viewed online in the public register at http://ico.org.uk/what_we_cover/register_of_data_controllers
Should you have any concerns about how your information is managed at the practice, please contact the GP Practice Manager. If you are still unhappy following a review by the GP practice, you can then complain to the Information Commissioners Office (ICO) via their website (www.ico.gov.uk).
If you are happy for your data to be extracted and used for the purposes described then you do not need to do anything.
If you do not want your personal data being extracted and leaving the GP practice for any of the purposes described, you need to let us know as soon as possible so please complete this online form.
There are 3 levels of opt-out to prevent your data being shared. Each opt-out requires the practice to add a different code to your medical notes. (Please be aware that certain regulations such as child protection and court orders may over-rule your choices.)
1. You do not want your data to leave the practice even for direct patient care.
2. You are happy to share your data for your care but do not want NHS Digital extracting your data. .
3. You are happy to share your data for your care and improving public health but do not want NHS Digital selling or sharing your data to third parties. .
All patients have the right to change their minds and reverse a previous decision. Please contact the practice if you change your mind regarding any previous choice.
Although sending information across the Internet means that privacy of data cannot be absolutely guaranteed,
our online forms offer high levels of security. The forms use HTTPS and TLS (using a 2048 bit certificate) to
encrypt data sent to and from your computer when using the site and our server environment is PCI DSS certified -
the highest standard of security associated with e-commerce and online finance solutions.
Form submissions are stored on the server for 28 days and are encrypted and secured with a private key known only by the GP Practice.
Should you have any concerns about sending your personal details using the web,
please use one of the alternative methods offered by our organisation.